<body> <span class="Apple-style-span" style="border-collapse: separate; font-family: 'Times New Roman'; font-size: medium; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "> <h1 align="left" style="margin-top: 0pt; margin-bottom: 0pt; " class="style3"> &nbsp;</h1> <h1 align="left" style="margin-top: 0pt; margin-bottom: 0pt; " class="style3"> HereditaireëMultipleëExostosenë/ëMultipleëOsteochondromenëLotgenotencontactgroepëNederlandë-ëOnderdeelëvanëdeëSPO</h1> </span> <span class="Apple-style-span" style="border-collapse: separate; color: rgb(0, 0, 0); font-family: 'Times New Roman'; font-size: medium; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "> <p><font class="style12"><b><font size="2">Belangrijk:</font></b><font size="2"><br> </font><b><font size="2">UwëInternetëbrowserëheeftëgeenëondersteuningëvoorëFramesëen/ofëJavaScript.ëOfëUëheeftëJavaScriptëuitgezetëinëdeëbrowserëconfiguratieëofëinëuwëpersonalëfirewall.ëOmëde<span class="Apple-converted-space">&nbsp;</span>HME/MOLotgenotencontactgroepëwebsiteëteëkunnenëbrowsen,ëisëhetënoodzakelijkëdatëJavaScriptëondersteuntëwordt.</font></b></font></p> </span> <span class="style5" style="border-collapse: separate; font-family: 'Times New Roman'; font-size: medium; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "> <h2> </span> <br><font class="style2"> <span class="style7" style="border-collapse: separate; font-style: normal; font-variant: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "> Watëis</span><span class="style6" style="border-collapse: separate; font-size: medium; font-style: normal; font-variant: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "><span class="style4">&nbsp;</span></span><span class="style4" style="border-collapse: separate; color: rgb(0, 0, 0); font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "><b class="style5">HME/MO</b></span><span class="style8" style="border-collapse: separate; font-style: normal; font-variant: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; ">?</span></font><br> <span class="Apple-style-span" style="border-collapse: separate; color: rgb(0, 0, 0); font-family: 'Times New Roman'; font-size: medium; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "> <font size="2" class="style1">HMEëstaatëvoorëdeëafkortingëHereditaireëMultipleëExostosen,ëdeëletterlijkeëvertalingëhiervanëisë&quot;ErfelijkeëMeervoudigeëBotwoekeringen&quot;.ëMOëstaatëvoorëMultipleëOsteochondromen.<span class="Apple-converted-space">&nbsp;</span><b style="color: black; ">HME/MO</b><span class="Apple-converted-space">&nbsp;</span>isëeenëaandoeningëdieëvooralëdeëlangeëpijpbeenderenëaantastëenëgekarakteriseerdëwordtëdoorëveleëexostosenë(botuitwassen/osteochondromen)ëinëhetëgebiedënabijëdeëgewrichten.ëHetëgaatëinë60%ëvanëdeëgevallenëomëeenëerfelijkeëaandoeningë(autosomaalëdominant).ëDeëverschijnselenëontstaanëvaakëalëinëdeëvroegeëkinderjaren,ëwaardoorëhetëvanëbelangëisëomëopëtijdëdeskundigenëteëraadplegen.ëHetëisëeenëzeldzameëziekteëenëkomtëbijëcircaë10ëtotë25ëopëdeë1ëmiljoenëmensenëvoor.ëInëNederlandëzijnënaarëschattingë200ëtotë400ëmensenëmet<span class="Apple-converted-space">&nbsp;</span><b style="color: black; ">HME/MO</b>.ëInëhetëengelsëtaalgebiedëwordt<span class="Apple-converted-space">&nbsp;</span><b style="color: black; ">HME/MO</b><span class="Apple-converted-space">&nbsp;</span>ookëwelëMHEë(HereditaryëMultipleëExostoses)ëgenoemd.</font></h2> </span> <span class="style1" style="border-collapse: separate; color: rgb(0, 0, 0); font-size: medium; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "> <h2> </span> <b> <span class="style9" style="border-collapse: separate; color: rgb(0, 0, 0); font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "> <b class="style5">HME/MO</b></span><span class="style7" style="border-collapse: separate; font-style: normal; font-variant: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "><span class="Apple-converted-space">&nbsp;</span></span><span class="Apple-style-span" style="border-collapse: separate; color: rgb(0, 0, 0); font-family: 'Times New Roman'; font-size: medium; font-style: normal; font-variant: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "><span class="style7" style="border-collapse: separate; font-style: normal; font-variant: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; ">Lotgenotengroep</span></span></b><br> <span class="Apple-style-span" style="border-collapse: separate; color: rgb(0, 0, 0); font-family: 'Times New Roman'; font-size: medium; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "> <font size="2" class="style1">DeëlotgenotenëinëNederlandëhebbenëzichëverzameldëinëde<span class="Apple-converted-space">&nbsp;</span><b style="color: black; ">HME/MO</b><span class="Apple-converted-space">&nbsp;</span>LotgenotengroepëNederland,ëwelkeëzichëtotëdoelësteltëlotgenotencontactëinëdeëbreedsteëzinëvanëhetëwoordëteëbieden,ëondersteundëmetëduidelijkeëinformatieëenëup-to-dateëwetenswaardighedenëenëontwikkelingenëinëdeëmedischeëwereld.ëVerschillendeëactiviteiten,ëzoalsëeenëjaarlijkseëlotgenotendagëenëeenëhalfjaarlijkseëuitgaveëvanëdeëNewsflashëkomenëiederëjaarëtotëstand.</font></h2> <p><font size="2" class="style1">Tevensëonderhoudenëwijënauweëcontactenëmetëmediciëenëandereëwetenschappersëdieëzichëopëdiverseëmanierenëinzettenëvoorëdeëaandoening<span class="Apple-converted-space">&nbsp;</span><b style="color: black; ">HME/MO</b><span class="Apple-converted-space">&nbsp;</span>enëgerichteëonderzoekenëverrichten.ëBovendienëhebbenëwijëopëeenëzoëduidelijkëmogelijkeëwijzeëalleëbelangrijkeëmedischeëenëgenetischeëinformatieëover<span class="Apple-converted-space">&nbsp;</span><b style="color: black; ">HME/MO</b><span class="Apple-converted-space">&nbsp;</span>samengevatëinëhetëartikel/informatiebulletinë&quot;<span class="style13"><span class="style5"><a href="data/bulletin.html">MultipleëExostosenëinëkortëbestek</a></span></span>&quot;.ëHiermeeëkuntëuëuwënaasteëomgevingëuitleggenëwat<span class="Apple-converted-space">&nbsp;</span><b style="color: black; ">HME/MO</b><span class="Apple-converted-space">&nbsp;</span>preciesëinhoudtëenëwelkeëbeperkingenëhetëmetëzichëmeeëkanëbrengen.</font></p> </span> <span class="style5" style="border-collapse: separate; font-family: 'Times New Roman'; font-size: medium; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "> <h2><font class="style2"><font size="5">StichtingëPatiëntenbelangenëOrthopaedie</font></font></span><font size="2" class="style1"><span class="Apple-style-span" style="border-collapse: separate; color: rgb(0, 0, 0); font-family: 'Times New Roman'; font-size: medium; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "><br> </span> </font> <span class="Apple-style-span" style="border-collapse: separate; color: rgb(0, 0, 0); font-family: 'Times New Roman'; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "> <font class="style1"><span class="style16">De&nbsp;<b style="color: black; ">HME/MO</b>&nbsp;lotgenotengroepëisëonderdeelëvanëde&nbsp;</span></font></span><font size="2" class="style1"><span class="style15" style="border-collapse: separate; color: rgb(0, 0, 0); font-style: normal; font-variant: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "><a href="http://www.patientenbelangen.nl/" target="_blank"><span class="style5">StichtingëPatiëntenbelangenëOrthopaedieë(SPO)</span></a></span><span class="style14" style="border-collapse: separate; color: rgb(0, 0, 0); font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "><span class="style10">.ëHetëgroteëvoordeelëvanëaansluitingëbijëdeëSPOëisëdatëdezeëgroteëstichtingëeenëgoedënetwerkëheeftëenëlidorganisatieëisëvanëdeëNederlandseëPatintenë/ëConsumentenëFederatieë(NP/CF).ëWijëkunnenëdankbaarëgebruikëmakenëvanëdezeëmogelijkhedenëenëonzeëbelangenëwordenëinëeenëgroterëverbandëbehartigd.</span></span></font><span class="Apple-style-span" style="border-collapse: separate; color: rgb(0, 0, 0); font-family: 'Times New Roman'; font-size: medium; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "></h2> <font size="2"><span class="style1">HetëbestuurëvanëonzeëgroepëheeftëregelmatigëbestuurlijkëoverlegëmetëhetëDagelijksëBestuurëvanëdeëSPOëenëonzeëvoorzitterëheeftëeenëzetelëinëhetëalgemeenëbestuurëvanëdeëSPO.ëDeëSPOësteuntëonsëookëopëfinancieelëterrein,ëzodatëwijëonzeëactiviteitenëkunnenëblijvenëorganiseren.ëHetëisëdaaromëvanëgrootëbelangëdatëiedereenëdieëzichëaangeslotenëheeftëbijëonzeëlotgenotengroepëtevensëbegunstigerëwordtëbijëdeëSPO.ëInëditëkaderëbevelenëwijëuëvanëharteëaanëvoorëeenëminimumëvanë18,00ëperëjaarëbegunstigerëteëworden.ëVoorëaanmeldingëenëmeerëinformatie:</span></font><span class="style1" style="border-collapse: separate; color: rgb(0, 0, 0); font-size: medium; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "><p> </span> <b> <span class="style11" style="border-collapse: separate; color: rgb(0, 0, 0); font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "> <b style="color: black; ">HME/MO</b></span><span class="style11" style="border-collapse: separate; color: rgb(0, 0, 0); font-style: normal; font-variant: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "><span class="Apple-converted-space">&nbsp;</span></span><span class="Apple-style-span" style="border-collapse: separate; color: rgb(0, 0, 0); font-family: 'Times New Roman'; font-size: medium; font-style: normal; font-variant: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "><span class="style11" style="border-collapse: separate; color: rgb(0, 0, 0); font-style: normal; font-variant: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; ">LotgenotenëContactgroep</span></span></b><span class="Apple-style-span" style="border-collapse: separate; color: rgb(0, 0, 0); font-family: 'Times New Roman'; font-size: medium; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "><span class="style1" style="border-collapse: separate; color: rgb(0, 0, 0); font-size: medium; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "><br> </span> </span> </span> <span class="Apple-style-span" style="border-collapse: separate; color: rgb(0, 0, 0); font-family: 'Times New Roman'; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "> <span class="style15" style="border-collapse: separate; color: rgb(0, 0, 0); font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "> <font face="Arial">p/aëMarionëPostëGeert<span class="Apple-converted-space">&nbsp;</span><br> Lammertslaanë8ë8421<span class="Apple-converted-space">&nbsp;</span><br>RTëOlderberkoop<span class="Apple-converted-space">&nbsp;</span><br>Tel:ë0516ë-ë451760<span class="Apple-converted-space">&nbsp;</span><br> Email:<span class="Apple-converted-space">&nbsp;</span><a href="mailto:hme@patientenbelangen.nl"><span class="style5">hme@patientenbelangen.nl</span></a></font></p> </span> </span> </body>