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HereditaireëMultipleëExostosenë/ëMultipleëOsteochondromenëLotgenotencontactgroepëNederlandë-ëOnderdeelëvanëdeëSPO</h1>
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<p><font class="style12"><b><font size="2">Belangrijk:</font></b><font size="2"><br>
</font><b><font size="2">UwëInternetëbrowserëheeftëgeenëondersteuningëvoorëFramesëen/ofëJavaScript.ëOfëUëheeftëJavaScriptëuitgezetëinëdeëbrowserëconfiguratieëofëinëuwëpersonalëfirewall.ëOmëde<span class="Apple-converted-space"> </span>HME/MOLotgenotencontactgroepëwebsiteëteëkunnenëbrowsen,ëisëhetënoodzakelijkëdatëJavaScriptëondersteuntëwordt.</font></b></font></p>
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Watëis</span><span class="style6" style="border-collapse: separate; font-size: medium; font-style: normal; font-variant: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "><span class="style4"> </span></span><span class="style4" style="border-collapse: separate; color: rgb(0, 0, 0); font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "><b class="style5">HME/MO</b></span><span class="style8" style="border-collapse: separate; font-style: normal; font-variant: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; ">?</span></font><br>
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<font size="2" class="style1">HMEëstaatëvoorëdeëafkortingëHereditaireëMultipleëExostosen,ëdeëletterlijkeëvertalingëhiervanëisë"ErfelijkeëMeervoudigeëBotwoekeringen".ëMOëstaatëvoorëMultipleëOsteochondromen.<span class="Apple-converted-space"> </span><b style="color: black; ">HME/MO</b><span class="Apple-converted-space"> </span>isëeenëaandoeningëdieëvooralëdeëlangeëpijpbeenderenëaantastëenëgekarakteriseerdëwordtëdoorëveleëexostosenë(botuitwassen/osteochondromen)ëinëhetëgebiedënabijëdeëgewrichten.ëHetëgaatëinë60%ëvanëdeëgevallenëomëeenëerfelijkeëaandoeningë(autosomaalëdominant).ëDeëverschijnselenëontstaanëvaakëalëinëdeëvroegeëkinderjaren,ëwaardoorëhetëvanëbelangëisëomëopëtijdëdeskundigenëteëraadplegen.ëHetëisëeenëzeldzameëziekteëenëkomtëbijëcircaë10ëtotë25ëopëdeë1ëmiljoenëmensenëvoor.ëInëNederlandëzijnënaarëschattingë200ëtotë400ëmensenëmet<span class="Apple-converted-space"> </span><b style="color: black; ">HME/MO</b>.ëInëhetëengelsëtaalgebiedëwordt<span class="Apple-converted-space"> </span><b style="color: black; ">HME/MO</b><span class="Apple-converted-space"> </span>ookëwelëMHEë(HereditaryëMultipleëExostoses)ëgenoemd.</font></h2>
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<b class="style5">HME/MO</b></span><span class="style7" style="border-collapse: separate; font-style: normal; font-variant: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "><span class="Apple-converted-space"> </span></span><span class="Apple-style-span" style="border-collapse: separate; color: rgb(0, 0, 0); font-family: 'Times New Roman'; font-size: medium; font-style: normal; font-variant: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "><span class="style7" style="border-collapse: separate; font-style: normal; font-variant: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; ">Lotgenotengroep</span></span></b><br>
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<font size="2" class="style1">DeëlotgenotenëinëNederlandëhebbenëzichëverzameldëinëde<span class="Apple-converted-space"> </span><b style="color: black; ">HME/MO</b><span class="Apple-converted-space"> </span>LotgenotengroepëNederland,ëwelkeëzichëtotëdoelësteltëlotgenotencontactëinëdeëbreedsteëzinëvanëhetëwoordëteëbieden,ëondersteundëmetëduidelijkeëinformatieëenëup-to-dateëwetenswaardighedenëenëontwikkelingenëinëdeëmedischeëwereld.ëVerschillendeëactiviteiten,ëzoalsëeenëjaarlijkseëlotgenotendagëenëeenëhalfjaarlijkseëuitgaveëvanëdeëNewsflashëkomenëiederëjaarëtotëstand.</font></h2>
<p><font size="2" class="style1">Tevensëonderhoudenëwijënauweëcontactenëmetëmediciëenëandereëwetenschappersëdieëzichëopëdiverseëmanierenëinzettenëvoorëdeëaandoening<span class="Apple-converted-space"> </span><b style="color: black; ">HME/MO</b><span class="Apple-converted-space"> </span>enëgerichteëonderzoekenëverrichten.ëBovendienëhebbenëwijëopëeenëzoëduidelijkëmogelijkeëwijzeëalleëbelangrijkeëmedischeëenëgenetischeëinformatieëover<span class="Apple-converted-space"> </span><b style="color: black; ">HME/MO</b><span class="Apple-converted-space"> </span>samengevatëinëhetëartikel/informatiebulletinë"<span class="style13"><span class="style5"><a href="data/bulletin.html">MultipleëExostosenëinëkortëbestek</a></span></span>".ëHiermeeëkuntëuëuwënaasteëomgevingëuitleggenëwat<span class="Apple-converted-space"> </span><b style="color: black; ">HME/MO</b><span class="Apple-converted-space"> </span>preciesëinhoudtëenëwelkeëbeperkingenëhetëmetëzichëmeeëkanëbrengen.</font></p>
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<h2><font class="style2"><font size="5">StichtingëPatiëntenbelangenëOrthopaedie</font></font></span><font size="2" class="style1"><span class="Apple-style-span" style="border-collapse: separate; color: rgb(0, 0, 0); font-family: 'Times New Roman'; font-size: medium; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "><br>
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<font class="style1"><span class="style16">De <b style="color: black; ">HME/MO</b> lotgenotengroepëisëonderdeelëvanëde </span></font></span><font size="2" class="style1"><span class="style15" style="border-collapse: separate; color: rgb(0, 0, 0); font-style: normal; font-variant: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "><a href="http://www.patientenbelangen.nl/" target="_blank"><span class="style5">StichtingëPatiëntenbelangenëOrthopaedieë(SPO)</span></a></span><span class="style14" style="border-collapse: separate; color: rgb(0, 0, 0); font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "><span class="style10">.ëHetëgroteëvoordeelëvanëaansluitingëbijëdeëSPOëisëdatëdezeëgroteëstichtingëeenëgoedënetwerkëheeftëenëlidorganisatieëisëvanëdeëNederlandseëPatintenë/ëConsumentenëFederatieë(NP/CF).ëWijëkunnenëdankbaarëgebruikëmakenëvanëdezeëmogelijkhedenëenëonzeëbelangenëwordenëinëeenëgroterëverbandëbehartigd.</span></span></font><span class="Apple-style-span" style="border-collapse: separate; color: rgb(0, 0, 0); font-family: 'Times New Roman'; font-size: medium; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "></h2>
<font size="2"><span class="style1">HetëbestuurëvanëonzeëgroepëheeftëregelmatigëbestuurlijkëoverlegëmetëhetëDagelijksëBestuurëvanëdeëSPOëenëonzeëvoorzitterëheeftëeenëzetelëinëhetëalgemeenëbestuurëvanëdeëSPO.ëDeëSPOësteuntëonsëookëopëfinancieelëterrein,ëzodatëwijëonzeëactiviteitenëkunnenëblijvenëorganiseren.ëHetëisëdaaromëvanëgrootëbelangëdatëiedereenëdieëzichëaangeslotenëheeftëbijëonzeëlotgenotengroepëtevensëbegunstigerëwordtëbijëdeëSPO.ëInëditëkaderëbevelenëwijëuëvanëharteëaanëvoorëeenëminimumëvanë18,00ëperëjaarëbegunstigerëteëworden.ëVoorëaanmeldingëenëmeerëinformatie:</span></font><span class="style1" style="border-collapse: separate; color: rgb(0, 0, 0); font-size: medium; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "><p>
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<b style="color: black; ">HME/MO</b></span><span class="style11" style="border-collapse: separate; color: rgb(0, 0, 0); font-style: normal; font-variant: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "><span class="Apple-converted-space"> </span></span><span class="Apple-style-span" style="border-collapse: separate; color: rgb(0, 0, 0); font-family: 'Times New Roman'; font-size: medium; font-style: normal; font-variant: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "><span class="style11" style="border-collapse: separate; color: rgb(0, 0, 0); font-style: normal; font-variant: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; ">LotgenotenëContactgroep</span></span></b><span class="Apple-style-span" style="border-collapse: separate; color: rgb(0, 0, 0); font-family: 'Times New Roman'; font-size: medium; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "><span class="style1" style="border-collapse: separate; color: rgb(0, 0, 0); font-size: medium; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-align: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-border-horizontal-spacing: 0px; -webkit-border-vertical-spacing: 0px; -webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; "><br>
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<font face="Arial">p/aëMarionëPostëGeert<span class="Apple-converted-space"> </span><br>
Lammertslaanë8ë8421<span class="Apple-converted-space"> </span><br>RTëOlderberkoop<span class="Apple-converted-space"> </span><br>Tel:ë0516ë-ë451760<span class="Apple-converted-space"> </span><br>
Email:<span class="Apple-converted-space"> </span><a href="mailto:hme@patientenbelangen.nl"><span class="style5">hme@patientenbelangen.nl</span></a></font></p>
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